I'm a 19 year old female who has been on lithium since February.
Thursday 1st Oct, I take my lithium same as usual between 10:30pm and 11pm and I’m okay but my shoulder starts to jerk a lil which I’ve had before so not worried because I have a knot in that shoulder which I figured was the cause. It eventually spreads to my leg so that one side is jerking then it spreads into my other leg, other arm, neck until I’m writhing on the bed every few seconds for about 15-30 secs at a time.
I went to the hospital and long story short, my lithium level was 1.02 (at 3am) when 3 weeks before in my lithium register blood test it was 0.53 which is lower than it’s ever been bc ive missed lots of doses. Anyway 24 hrs and a lot of water later, I discharge myself from hospital as the jerks had lessened so it was only in my limbs.
They did blood tests at the hospital and my organs were all fine. They thought it was lithium toxicity (as I am sensitive to meds) so back at 600mg again when I left the hospital.
I see my psych the 5th oct and am put on 400mg of lithium and the shakes got worse so I went off the lithium and have been off it for over a week now and the shakes are still happening on & off.
My psych has booked me to see a neurologist and I’m having a CT scan next Monday but I’m just wondering what would cause whole body jerks and memory loss (I’ve lost about 2 months after blacking out and it takes me a while to remember most of it again)
What could this be?
2015-10-21 5:08 pm
回答 (2)
2015-10-21 5:18 pm
Lithium problems would be the apparent cause. Otherwise. these types of symptoms together tend to occur from physical changes to the brain such as tumors, calcium or fat deposition, or pinpoint bleeding, but they could also occur from abnormal brain activity that has no apparent physical cause, or from side effects of medications or alcohol. The CT scan is a good idea - if only to rule out any physical problems.
2015-10-21 5:17 pm
From what you describe, it sounds like the lithium is causing that. The medical staff may be telling you otherwise but I think they should give you something else to be sure. There are lots of alternatives nowadays to lithium and even though I know the doctors like to stick with medicine that balances you well, I think they should put in some effort to finding another more suitable medication.
I had a friend that was originally on lithium but it didn't suit her very well so they changed her to something else, then something else, then yet another medication until one finally worked, but it still had unsuitable side effects. So admittedly finding the right medication and dosage can be difficult, but lithium toxicity is well documented and if your body is going into seizures only when you have the medication then really you shouldn't be having lithium. The onus is on your doctor to medicate you appropriately.
I had a friend that was originally on lithium but it didn't suit her very well so they changed her to something else, then something else, then yet another medication until one finally worked, but it still had unsuitable side effects. So admittedly finding the right medication and dosage can be difficult, but lithium toxicity is well documented and if your body is going into seizures only when you have the medication then really you shouldn't be having lithium. The onus is on your doctor to medicate you appropriately.
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